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Important Patient Survey

Cholangits_Survey

Have you ever had a cholangitis attack? If so, please take this important survey today.

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Quality of Your PSC Care

ERN RARE-LIVER Survey results

ERN RARE-LIVER survey results have been published. Thank you to the 939 people with PSC who took part in this survey.

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PSC Patient Insights Survey Part 2

Patient Insights Report Clinical Trials

Patient Insights Report – PSC Clinical Trials reports on attitudes to PSC research and study design and makes recommendations to improve recruitment.

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COVID-19 Survey

Logo ERN-rareliver

Please can you answer a few questions about COVID-19 so we can better evidence the risks to patients?

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PSC Survey Insights Part 1

Cholangitis attacks

We are delighted to share our first insights following the PSC Support survey we launched last year to help shape PSC research design.

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Top Ten Issues for People with PSC

Top Ten PSC Issues Survey

Help us find the top ten issues for people with PSC by completing this short survey. We’re using the results to improve services for people with PSC.

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