patient perspective – PSC Support

Quality of Your PSC Care

13/07/2023 |

ERN RARE-LIVER survey results have been published. Thank you to the 939 people with PSC who took part in this survey.

10/01/2023 |

Book your FREE place for our Information Day in Manchester.

22/11/2022 |

We’re bringing our in-person Information Day to Manchester next February.

25/03/2020 |

Mark, a PSC patient, takes a humorous look at living with PSC, colonoscopies, transplant assessment, and going on a clinical trial.

02/02/2020 |

We live streamed the presentations yesterday at our Information Day in Wales. Watch now.

12/07/2019 |

Maxine was recently invited to talk at the South West Liver Nurses study day.

11/07/2019 |

PSC research priorities presented at the BASL Immune-Mediated Liver Disease Special Interest Group.

09/06/2019 |

How do you get on a clinical trial for PSC? What’s involved? Gareth shares his experience.

21/05/2019 |

Maxine gives an account of her PSC diagnosis, being listed for liver transplant and life after her liver transplant for PSC.

15/11/2018 |

Find out what patients think about having PSC and their attitudes to research and treatments.