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Liver Transplant Guidelines

29/02/2020
Liver Transplant Guidelines

Read new transplant guidelines summary and how we’re helping to improve liver transplant services.

Rare Disease Day 2020

29/02/2020

Saturday 29th of February is the 13th international Rare Disease Day.

PSC Support at the Vitality Big Half 2020

27/02/2020

Meet our amazing runners who are taking part in this years Vitality Big Half to raise funds for PSC Support!

Date Announced for Max and Keira’s Law to Come Into Effect

25/02/2020

Today the Government has announced the date that the new opt-out system will come into effect.

Joanna: Cant Afford My Medication

20/02/2020
Prescription Charges Coalition

Thousands with long-term conditions like PSC and IBD have to pay for their prescriptions, while those with conditions like Type-1 diabetes don’t pay a penny. Why?

My Life, My Heart Documentary

18/02/2020
Jack documentary on organ donation 2

CBBC have produced a documentary called My Life, My Heart, which follows the story of Jack, now aged 13, while he waited for and eventually received a heart transplant.

Yellow Card Awareness Week

17/02/2020

The Medicines & Healthcare products Regulatory Agency are raising awareness of their Yellow Card Scheme.

New Clinical Trial for PSC: Cilofexor

16/02/2020
A-new-clinical-trial-for-psc

A new Phase 3 clinical trial is starting to recruit volunteers across the UK and Europe testing the drug Cilofexor/ GS-9674 in PSC patients.

Coronavirus Information

14/02/2020

UPDATED 13 Mar 2020 The latest COVID-19 guidance – updated regularly.

World Cholangiocarcinoma Day

12/02/2020

Today, organisations from all over the world are joining together to raise awareness of cholangiocracinoma.