Rare Disease
Use Your Voice to Shape the Future of Liver Transplant Allocation
As the only UK patient organisation dedicated to improving the lives of people affected by PSC we know how important it is for your voices to be heard. That’s why we’re sharing an opportunity for you to have your say in the current review of the National Liver Offering Scheme (NLOS).
Read MoreRepresenting PSC Patients at the ERN RARE-LIVER Annual Meeting
Martine Walmsley, PSC Support Head of Research Strategy, represented patients with rare liver diseases at the ERN RARE-LIVER annual meeting.
Read MoreKieron Dyer’s PSC Journey
Footballing legend Kieron Dyer shares his PSC journey, talking diagnosis, life with PSC, liver transplantation and recovery
Read MoreRare Disease Day 2020
Saturday 29th of February is the 13th international Rare Disease Day.
Read MorePatient Survey on Acceptability of Treatments in AIH
If you have AIH, please take a few moments to help researchers and doctors improve treatment.
Read MoreMedicine Development Training
This week, Maxine, PSC Support’s Programme Development Officer, has been extending her knowledge in this area with EURORDIS, the European patient organisation for rare diseases.
Read MoreRare Disease Day 2019
Raising awareness online and on radio.
Read MoreUK Strategy for Rare Diseases
PSC Support calls for a review of the UK Strategy for Rare Diseases.
Read MoreRare liver diseases across Europe
PSC Support attended the ERN annual meeting to represent patients on behalf of the EASL Policy and Public Health Committee
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