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Use Your Voice to Shape the Future of Liver Transplant Allocation

As the only UK patient organisation dedicated to improving the lives of people affected by PSC we know how important it is for your voices to be heard. That’s why we’re sharing an opportunity for you to have your say in the current review of the National Liver Offering Scheme (NLOS).

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Organ Donation Week 2024

This year for Organ Donation Week we’re turning our channels pink and reminding people to register their decision about organ donation.

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Kieron Dyer’s PSC Journey

Footballing legend Kieron Dyer shares his PSC journey, talking diagnosis, life with PSC, liver transplantation and recovery

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James’s Midnight Ride for a Cure

James, Tim and Al’s Midnight Ride for a Cure Pedalling to accelerate progress towards finding a cure for PSC In the early hours of July 5th, 2024, Oxford resident James and his two friends, Tim and Al, will embark on a unique cycling journey. Starting at 1:30 am from Oxford, they will ride to the…

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Organ Donation Week 2023

Two women smiling looking at camera, grey hair, pink background with text saying 2 minutes now could save up to 9 lives

Monday 18th September marks the beginning of Organ Donation Week 2023. This year’s campaign hopes to see at least 25,000 people register to become organ donors for the first time.

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Dan’s Journey from Diagnosis to Transplant to Recovery

White male with brown hair, smiling flexing biceps while carrying a barrel and covered in mud

Undergoing a liver transplant is a remarkable achievement, yet what follows in its wake? Six months after receiving a new liver, Dan has kindly shared an update on his journey with PSC.

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Organ Donation Week 2020

Make your organ donation decision and encourage others to do the same this Organ Donation Week.

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