Advocacy – Page 4 – PSC Support

PSC Support Champions Digital Healthcare

29/11/2019 |

PSC Support champions Digital Healthcare. Gary Taylor, PSC Support Trustee advocate for PSC patients at the East Midlands and West Midlands Clinical Senates.

UK-PSC Study Day

28/10/2019 |

UK-PSC held a Study Day in Leeds on 25 October to educate healthcare professionals and researchers about PSC, its care and update on the latest PSC research.

Help Improve Care for Young People

23/10/2019 |

Chance for the under 25s to help choose the 2020 RCPCH &Us youth led project. Ballot open until 04 November 2019

The PSC Wellbeing Study Update

04/10/2019 |

After identifying that there was a significant impact on emotional wellbeing when living with PSC, yet a lack of psychological support for both patients and their loved ones, PSC Support commissioned research to address this situation. Publication in BMJ.

2019 Research Survey Results

24/09/2019 |

Results published from the PSC Support Survey (full report to follow).

Raising Awareness of PSC to Healthcare Professionals

22/09/2019 |

PSC Support raises awareness of PSC and works to improve liver healthcare for people with PSC at the 2019 BASL meeting.

Faecal Microbiota Transplant and Vancomycin for PSC

13/09/2019 |

Take two minutes to do our quick poll about the best way to conduct a faecal microbiota transplant and vancomycin study. THANK YOU!

A World Without PSC campaign

13/08/2019 |

Help us beat PSC!

PSC Support 2019 Research Survey

26/07/2019 |

Take part in our new survey to understand why people do, and don’t, take part in research, and enter our £50 Amazon voucher prize draw.

Liver Transplant Policy

23/07/2019 |

Ensuring equitable access to donor organs for people on the liver transplant waiting list.